viernes, 31 de octubre de 2014
jueves, 30 de octubre de 2014
Group 8_Micro-Architecture: DOWN'S SYNDROME
Down’s syndrome is a genetic condition caused by the presence of an extra chromosome 21 in the body’s cells. Down’s syndrome is NOT a disease, and it is not a hereditary condition. It occurs by chance at conception.
G2_Multiple Sclerosis Desease_Micro-Architecture
MULTIPLE SCLEROSIS DESEASE_MICRO-ARCHITECTURE
PARTS OF THIS DESEASE IN COSTUME
MECANISM OF HANDS:
Group 1. Parkinsons Disease Micro architecture.
miércoles, 29 de octubre de 2014
.JPG)
G3_Work in progress
Micro architecture:
Body movement restriction (speed and turning) and psicological burden of other´s people look
CHRONICLE OF A MEETING
On Monday, the
27th of October we manage an appointment with the center AHEDYSIA (Humanitarian
Association of Degenerative Diseases and Syndromes of the Infancy and
Adolescence), and we could approach to visit the facilities and to know some of
affected by the degenerative diseases, concretely the Distrofia Muscular.
The center,
opened from 1999 and directed by Antonia, works with children and teenagers who
suffer different diseases and with some adult who only finds cover in a center
as familiar(family) as this one in kilometres around. Its principal labor is
not the physical rehabilitation of the affected ones, so the degenerative
diseases have few solutions a today, but it works to emotional level and every
person who goes into this center ends turning into one more relative of, as
they say, " this small great family ".
Before knowing
young people affected by the chosen disease, they were steeping us of
information about the degenerative diseases and about the multitude of variants
that in these, since into a small variation into the genetics it changed the
degree of the disease or the own disease. Once learned the general concepts, we
centred on the muscular distrofia and they were speaking to us about the
patients of this disease of their center and the situation of their families,
which took us to a following step, day after day of a patient and his family
Beginning from
the moment of his/her birth, the most complicated thing is the diagnosis,
sometimes for medical failure, for ignorance or because it is not perceived so
simply. Once diagnosed the patient is treated as a clinical way by the doctors
and the important of AHEDYSIA, is that they treat the patients as people, so
for them we all are equal. The psychological factor begins on the parents, they
are the first ones that have to confront this situation, or as they say in the
center, this opportunity to learn more of the life and of people. Often
problems arise in the familiar core and ultimately it ends in breaks that
divide the family and complicate more the care of the children, both for the
physical level and for the psychic one of exigency for the one who takes care
of it, and we have to rely on the economic factor of the care of a person that needs
more normal things.
But the main
problem is when the child begins to be aware of what is happening around them:
"Why I can
not do what the other children?"
"Why have
you made me thus?"
"Why do I
have to go to the doctor so much?" ...
"Am I
going to die?"
There are
usually social problems, his(her,your) condition is not accepted always equally
and often there can not be related to the society, in other cases for fear and
for overprotection on the part of the parents, which carries to a more rapid
degeneracy of the disease, since the psychology concerns deeply the physics of
the individual
We were lucky
to know a member of this association, we will call her A. Initially we didn’t
know how to react with her, as if we had to act in a different way on having manner
with a person that was suffering a disease like that, until we realized that
she was who treated us as normal and current person, which made us to see that there
was no so many difference between us and that we could be a group of people
seeking to spend good moments united. It was a great learning for us and it
gave us the step to think about many things, not of the disease and its patient,
if not on life.
To finish, I
must say that, as a general rule, we usually think that these people are
destined to suffer, that has not sense to fight for such a lost reason and that
we are lucky for not suffering this way, but the nice thing of AHEDYSIA is that
they consider theirselves "lucky", because they are people who have
big challenges that humanize them, that makes them to see that we all are equal
and that we must fight, for us and for those that surround us, I mean, to be a
person.
http://www.ahedysia.org/
https://www.facebook.com/ahedysia.humanitaria?ref=ts&fref=ts
http://www.ahedysia.org/
https://www.facebook.com/ahedysia.humanitaria?ref=ts&fref=ts
martes, 28 de octubre de 2014
viernes, 24 de octubre de 2014
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