Group 3_Muscular Distrophy

Six years have passed since Jørn Utzon´s dead. The family has retaken control of the house,

after struggling with organizations that claimed it to be patrimony of humanity, now they can

enjoy they house for themselves as a second house or shared family holiday home.

The family tree has spread, there are many Utzon grandchildren and many more great-

grandchildren, they use to spend some holiday time on the Mallorca´s house by taking turns,

although sometimes they overlap and it becomes a great family summit where brothers,

cousins, uncles and friends spend quality time in the sunny spanish island, away from their

routine and their cold, dark and depressive Scandinavian weather.

But now the family faces a challenge, an Utzon´s grandson: Timo and his wife Bjørk have a son,

Tor that has Duchenne muscular dystrophy. They are reluctant to spend some holiday time in

Can Lis, because Tor´s dependency has worsen the last years, taking it to the extent that he

has to use a wheelchair most of the time, and he will continue losing mobility as time goes by.

Her mother is particulary worried about being away from all the specialist that Tor sees every

week: physiotherapist, doctors, nutritionist, occupational therapist, psychologist, masseuse

and the list goes on, they won´t be available in Mallorca.

Tor´s father, Timo, says there´s nothing to worry about:

-He will be fine… I have spent every summer in that house, you don´t need the doctors, you

don´t need wifi, tv or internet, the place is great: the views, the nature, the sun, the beautiful

house. Everytime I came back to Denmark from Can Lis I felt better, as if I refilled my batteries.

It´s going to be good for Tor, Grandpa Jørn knew what he was doing.

Bjørk is not sure about it, lately Tor has shown signs of rebellion, it could be due to the

frustration of his condition or because he´s a teenager, probably both. Sometimes it seems like

he´s just another kid that wants to play and make noise, but other times he seems distant, as

he needed some space and time for his own, to meditate and catch up with everything that´s

going on with his life. Bjørk is worried about how he is going to deal the presence of cousins

and friends during holidays. She finally decides they need to make some changes in the house

to make Tor´s stay more easy and pleasant, Grandpa Jørn knew a lot of architects, it´s not

going to be difficult to find one who can help them with their situation…





LOISA,MATIAS
MARTIN,JORGE
RUBIO,ALEJANDRO

G3 - MICROARCHITECTURE IN PROCESS

V1. Digital Proposal (Study):

V2.- Analogic  Proposal:

Final Version Test:

G3_Work in progress

G3_Work in progress

FEELINGS AND ARTICULATIONS

G3_Work in progress

Last Sunday, 2ndNovember, we were in the port from Alicante because there, our work could have a progress.

We were with AHEDYSIA again and families with some sick person. But the most interesting part was seeing children that had this illness and that were there playing football, or running or hockey or biking or...they were smiling and having good times with other children. That's what we learnt on Sunday, they are just children and they feel bad when people treat them as strange people. If we play with them as children that they are, they enjoy each moment like anyone and they forget everyrhing else.

Information about the day:
http://www.dxtadaptado.com/blog/2014/10/31/alicante-celebra-una-nueva-jornada-de-deporte-adaptado/#more-78215

Radio channel where we can hear news about "deportesadaptados"
http://www.rtve.es/alacarta/audios/si-se-quiere-se-puede/

G3_Work in progress

Micro architecture:

Body movement restriction (speed and turning) and psicological burden of other´s people look

CHRONICLE OF A MEETING

On Monday, the 27th of October we manage an appointment with the center AHEDYSIA (Humanitarian Association of Degenerative Diseases and Syndromes of the Infancy and Adolescence), and we could approach to visit the facilities and to know some of affected by the degenerative diseases, concretely the Distrofia Muscular.

The center, opened from 1999 and directed by Antonia, works with children and teenagers who suffer different diseases and with some adult who only finds cover in a center as familiar(family) as this one in kilometres around. Its principal labor is not the physical rehabilitation of the affected ones, so the degenerative diseases have few solutions a today, but it works to emotional level and every person who goes into this center ends turning into one more relative of, as they say, " this small great family ".

Before knowing young people affected by the chosen disease, they were steeping us of information about the degenerative diseases and about the multitude of variants that in these, since into a small variation into the genetics it changed the degree of the disease or the own disease. Once learned the general concepts, we centred on the muscular distrofia and they were speaking to us about the patients of this disease of their center and the situation of their families, which took us to a following step, day after day of a patient and his family

Beginning from the moment of his/her birth, the most complicated thing is the diagnosis, sometimes for medical failure, for ignorance or because it is not perceived so simply. Once diagnosed the patient is treated as a clinical way by the doctors and the important of AHEDYSIA, is that they treat the patients as people, so for them we all are equal. The psychological factor begins on the parents, they are the first ones that have to confront this situation, or as they say in the center, this opportunity to learn more of the life and of people. Often problems arise in the familiar core and ultimately it ends in breaks that divide the family and complicate more the care of the children, both for the physical level and for the psychic one of exigency for the one who takes care of it, and we have to rely on the economic factor of the care of a person that needs more normal things.

But the main problem is when the child begins to be aware of what is happening around them:

"Why I can not do what the other children?"

"Why have you made ​​me thus?"

"Why do I have to go to the doctor so much?" ...

"Am I going to die?"

There are usually social problems, his(her,your) condition is not accepted always equally and often there can not be related to the society, in other cases for fear and for overprotection on the part of the parents, which carries to a more rapid degeneracy of the disease, since the psychology concerns deeply the physics of the individual

We were lucky to know a member of this association, we will call her A. Initially we didn’t know how to react with her, as if we had to act in a different way on having manner with a person that was suffering a disease like that, until we realized that she was who treated us as normal and current person, which made us to see that there was no so many difference between us and that we could be a group of people seeking to spend good moments united. It was a great learning for us and it gave us the step to think about many things, not of the disease and its patient, if not on life.

To finish, I must say that, as a general rule, we usually think that these people are destined to suffer, that has not sense to fight for such a lost reason and that we are lucky for not suffering this way, but the nice thing of AHEDYSIA is that they consider theirselves "lucky", because they are people who have big challenges that humanize them, that makes them to see that we all are equal and that we must fight, for us and for those that surround us, I mean, to be a person.




http://www.ahedysia.org/
https://www.facebook.com/ahedysia.humanitaria?ref=ts&fref=ts

Group 3 - Excel charts

Measurements on the house

Codes

 Cost of life by country - comparative

Tourism on Spain

Cost of life big chart

Vitamin D deffciency

Vitamind d levels on swedish having take holidays below 40ºlatitude

Suicide rate by country

Group 3 - Excel Charts in Progress

Collage Excercise 4 - Group 3

EX 03_Collage_G3